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Jul
Feb 11 min read
Join me on cloud 9
Gaining momentum. That's what it feels like. I'm doing well. Very well in fact. I'm currently on my happy-mood cloud and nothing can push...
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Jul
Dec 16, 20244 min read
Uphill and downhill and this in-between
I woke up again. Four weeks ago. Awakened from an artificial coma, which developed into a malignant neuroleptic syndrome from which I was...
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Jul
Nov 28, 20246 min read
A flight home in an induced coma, an island in the Atlantic, a broken nose.
My happy bumblebees have brought me home again. Thanks to my body. Thanks to my strength. For this blog post, even I am still at a loss...
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Jul
Oct 12, 20242 min read
Somewhere between cheering sky-high and I-can't-go-on-anymore
Shuntal & I on our first flight. Who is Shuntal? That's how my brother calls my VP shunt. https://www.glueckshummeln.com/en/hydrocephalus...
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Jul
Sep 26, 20241 min read
I am angry. Angry little bumble-bees.
Real Talk. Even I sometimes get overwhelmed by the angry little bumble-bees. I look healthy, from the outside. But what you can´t see are...
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Jul
Sep 15, 20244 min read
A helicopter flight over the Dolomites, three ambulance rides, and lots of morphine.
I always had the dream of flying in a helicopter. And over the Dolomites? A dream come true. But this flight was neither planned nor...
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Jul
Sep 10, 20243 min read
You are important! Author: Annika, 10 years old
After my last entry was a bit somber, and since I really want to share more about the Happy-bumble-bees, here’s one that still touches me...
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Jul
Sep 6, 20244 min read
Two cases of water or a medium-sized Labrador
Two cases of water or a medium-sized Labrador weigh 34 kg. At 34 kg, I was discharged from the hospital after a spinal surgery. April 14,...
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Jul
Aug 25, 20243 min read
She gets nothing from me. Begged for help.
My eyes hurt. I feel like I'm in the middle of a sea of cotton. But the cotton is squeezing my head. This is when my 30-minute window...
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Jul
Aug 25, 20242 min read
Why became moody, when you can shake your booty!
Let's be honest. Everyone has their own struggles, their life, their everyday routine. It doesn’t matter if you're chronically ill,...
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Jul
Aug 19, 20241 min read
I am worth it.
I am cheerful, curious, strong, and unique. But I can also be desperate, weak, and sad. What does it feel like to live with chronic...
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