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Blue waiting room

What happened

Life happened.

I’ve been thinking about how to briefly summarize the most significant diagnoses and surgeries in my life so far. 'Brief' is perhaps a matter of perspective.

  • 1988 (at age 4): Diagnosed with scoliosis. Treatment: from that point on, wearing a brace and weekly physical therapy.

  • 1998 (at age 14): First major surgery. Spinal fusion from the 4th thoracic vertebra to the 4th lumbar vertebra (TH4-L4).

  • 2017: Diagnosed with Chiari Malformation. Second surgery: decompression, craniectomy. 

  • 2017: Diagnosed with a pineal cyst. It’s monitored annually. As long as it doesn’t change or cause problems, it will remain where it is. Nothing can be ruled out, but surgery would be risky.

  • 2019: Third surgery: Further spinal fusion in the cervical spine (C3-4).

  • 2021: Fourth surgery: Neurolysis of the C2 nerve roots and C2 rhizotomy. Muscle tissue had adhered to my nerves, so the nerve roots were permanently severed.

  • 2022: Blind blood patch attempt for a CSF leak. I had a CSF leak near the 4th thoracic vertebra (likely since the first surgery in 1998). The screw there is very close to the spinal canal. Before this blood patch, I had countless doctor consultations and examinations due to positional headaches, which I eventually learned to live with. The leak was never detected through imaging. However, the theory emerged that it was located around the 4th thoracic vertebra, so a blind patch attempt was made at that level. A CSF leak is closed by injecting one’s own blood at the site, which clots and seals the hole.

  • 2024: Fifth surgery: Placement of a VP shunt and a pressure sensor in the head.

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